'Memories Matter': A book about caregiving for a loved one with Alzheimer's
As Dawn Brenniman Wirtz thumbs through the pages of her first novel, it still doesn't feel real.
"It was really so important to tell my mom's story. She doesn't have her voice anymore," Brenniman Wirtz said.
In 2018, Brenniman Wirtz's mom, Kathy Brenniman, was diagnosed with Alzheimer's disease. At first, Brenniman was able to keep up with her life and activities. Then, COVID-19 hit. The isolation and change of routine seemed to accelerate Brenniman's symptoms. Simple tasks became not so simple. As the disease accelerated, Brenniman struggled to eat and use the bathroom.
"She's very childlike," Brenniman Wirtz said. "So Alzheimer's goes deeper than just memory loss and losing items."
Now, Brenniman Wirtz takes time off work and away from her family every other week to travel to the Chicago area to help take care of her mom.
"Then being in my childhood home, being back in my bedroom and caregiving for my mom and watching this progress was so emotional," Brenniman Wirtz said.
She is far from alone. The Alzheimer's Association Iowa chapter says 80,000 caregivers are providing 118 million hours of unpaid care in Iowa, a value of $2.7 billion, which adds up to a physical and emotional burden.
"I'm like, I have to do something with these emotions," Brenniman Wirtz said. "And so I was looking up on Amazon trying to find a book that was saying what I'm feeling, and I couldn't find that exactly."
And that's why she wrote "Memories Matter," a story for caregivers about love, loss, and leaning in.
"I am proud of myself. And I know my mom would be, too," Brenniman Wirtz said.
There may be a toll, but spending time with her mom in her final chapter is priceless.
"Life slows down. We go to the arboretum and we literally stop and smell the flowers," Brenniman Wirtz said. "I wouldn't be doing that right now if it weren't for Alzheimer's."
You can order Brenniman Wirtz's book, "Memories Matter," now on Amazon.
Brenniman Wirtz's story will be featured during the Alzheimer's Association's Purple Soiree on June 6. The event is the Alzheimer's Association Iowa Chapter's biggest fundraising event of the year. Tickets are still available.